Now I Have ........

Well a few weeks back I had a Endoscopy done to look for what could be causing me to have chest pains lets just say nothing came of that. Except for the fact that I had chest pains afterward and I had to go to the Emergency Room which is always my favorite place to waste time. When I was at the E.R. they did a CT of my chest and they didn't find anything wrong with my chest but they did accidently find that I have something on my Thyroid.

So now they found something on my Thyroid which means I had to go to my doctor and then he had to refer me for a Ultrasound of my neck. The Ultrasound shows three nodules on my Thyroid one is about half an inch and the others are real small . So now you are probably asking what does she have to go through now well now I have to have a needle put into my neck so that they can biopsy the nodule or nodules but I have to wait for a month before I can find out anything about it. Doctors don't seem to understand that when you have a lump of any kind that you want to get it checked right away because it kind of just puts your happy life on hold until you know that it is not bad..

From what I understand Thyroid Cancer is very rare and happens more in men than in women. I think there is like a 7% chance that it could be cancer so I am not horribly concerned but still it sucks having to wait so long to find out what the conclusion is to this chapter in my life.

On top of that I have to go and see my Neurologist and have a MRI to see if I have lesions on my brain from the M.S. that I have. My life is so full of doctors appointments. Sometimes I hate being me.

CCSVI? Can It Help?

Let me first off try to explain what CCSVI is it stands for Chronic Cerebrospinal Venous Insufficiency. CCSVI is a new procedure that researchers are investigating to see if it is possibly a helpful solution to some M.S. patients. 

What happens with this is that they take a patient with Multiple Sclerosis and do imaging of their veins that are coming from the brain and if these veins are some how blocked or flowing the wrong way they will go in with a little device that goes up into the vein and expands using a small balloon that opens up the veins so that they will flow correctly. 

As a result of opening the veins back up to the way they should be doctors are hoping that it will help give some relief to people with Multiple Sclerosis symptoms. So far there has been little success with the out come of the patients. There have been some relief of some symptoms in some patients but not all. This procedure is by no means a cure for Multiple Sclerosis but it might help doctors in finding a cure. For now at least if it does relieve some symptoms that would be better than nothing I guess.

Pins and Needles

I get this feeling sometimes through out my body that feels like I am being poked by pins and needles. I know that as a part of M.S. you can have misfires in your nerves which feels like tingling or like I am being prodded by sharp instruments

Like tonight as I am using the internet my hand starts to tickle right around my knuckles and I keep thinking that oh I must have a hair on top of my hand but after several times of looking at my hand and rubbing my hand I made the conclusion that the feeling was in my hand not on top. It almost felt like a tickling sensation.

I don't know about other people with Multiple Sclerosis but I get a lot of pain in my hands and a lot of shaking of my hands. When my muscles twitch it starts to get frustrating because you want it to stop.

Wow What a Headache

A couple nights ago I had one of the few worst headaches of my life. I thought my head was going to burst. I was crying because it hurt so bad. I think my neck muscles got really tight and that may have caused my headache. I only had a headache on the right side of my head and it hurt so bad. I have migraines to begin with but most of the time I can catch them right before they start. When I feel a headache coming on I take my migraine medicine before they get to bad and normally they work with in a half hour. I tried taking my headaches pills but they didn't even make a dent . Then I had a thought that if it is my neck muscles maybe if I take a muscle relaxer it would help so I took two and that seem to work.

The fallowing day I was so tired and my body just hurt all over and the side of my head where I had the headache still felt weird. I know having M.S. that I can have symptoms that I can't explain and I don't know if it was caused by M.S. our not. I hope that I can avoid it ever happening again but most likely not.

Surgery Number ?

So on August 9th I had what I consider my 10th surgery maybe. I thought it was going  to be easy sailing going through the recovery but no such luck. I told the people at the hospital 5 times or more not to use steri strips because I have a allergic reaction to the adhesive on the strips. They wrote it down and noted it in my chart that no steri  strips could be used. So I thought I was in the clear but then I get home and I start to itch and I decided to pull off the bandages they had on my incisions and when I did there was steri strips.

I had  what the call tape burn on all of my incisions and I was so itchy. The stuff was weeping fluid like a real burn with blisters. I wanted to crawl out of my skin from all the itching I was feeling.

The procedure I had done was called a Oophorectomy. They used a robot to remove my let ovary and remove any endometriosis that they might find and any Ovarian cysts that may have been in there.

I am now two weeks into recovery and I am starting to feel less itchy but one of my incisions itches more than the rest and is warm to the touch . I wonder if an infection maybe setting in. I hope not because that  is the last thing I need right now.

Remember Life is so Precious

So I woke up this morning to the news that my Grandpa had a stroke at 1am last night and he was flown to Harborview hospital in Seattle. I have been reminded today how special life is and that we should enjoy each other while we can before it is too late. Always remember to tell each other that you love one another and never let anything get in the way of letting your loved ones know how much you care.

 My Grandpa has been there through my whole life and I can't imagine life without him here but I know that day will come someday. My Grandpa is 83 years old so I know that time is drawing nearer. I love him with all my heart and he is the only Grandpa I have left. I hope he recovers quickly.

Endometriosis Surgery Again

On August 9th I will have probably my 10th laproscopic surgery. It will be to remove cysts and any endo lesions that they fine as well as take out my left ovary. My left ovary has been causing me problems for a while now so it is time for it to go. I hope by taking out that ovary that the cysts won't show up as often. I hate how much these cysts cause problems with my body and my life. I am tired of being in pain all the time and I just wish that I could get a good med regamine to help get rid of the pain.